Do you have Huntington's disease or know someone who does? While Huntington's is a hereditary, degenerative, and ultimately terminal brain disease, you can find help and support!
What is Huntington's Disease?
Huntington's disease (HD) slowly diminishes the affected individual's ability to walk, talk, and reason. In time, the person with HD relies completely upon others for their personal care. HD affects the lives of entire families - emotionally, psychologically, socially, and economically. HD affects males, females, and knows no ethnic and racial boundaries. Every child of a person with Huntington's disease has a 50/50 chance of inheriting the fatal gene.
Application Features:
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Do you have Huntington's disease or know someone who does? While Huntington's is a hereditary, degenerative, and ultimately terminal brain disease, you can find help and support!
What is Huntington's Disease?
Huntington's disease (HD) slowly diminishes the affected individual's ability to walk, talk, and reason. In time, the person with HD relies completely upon others for their personal care. HD affects the lives of entire families - emotionally, psychologically, socially, and economically. HD affects males, females, and knows no ethnic and racial boundaries. Every child of a person with Huntington's disease has a 50/50 chance of inheriting the fatal gene.
Application Features:
■ Education – Information – Resources!
■ What do you know about HD? Try the HD Trivia Quiz! Brush up on terminologies and stay informed!
■ HDDrugWorks.org – Doctor LaVonne Goodman brings us comprehensive documents: Algorithms / Flow Charts for symptoms of JHD/HD. Become a “Symptom Survivor” and so much more!
■ (HSG) Huntington Study Group: Find studies and trials in your area!
■ Stay up to date on news within the international HD community!
■ Research and Medical updates and articles.
■ Doctors and Support Groups – Internationally!
■ Listen to podcasts pertaining to Huntington’s disease.
■ Help 4 HD Talk Radio – The HD View!
■ BlogTalkRadio: Live broadcasts to the international community to discuss a range of topics pertaining to Huntington’s disease! Call in or send us questions!
■ “The Faces of Huntington’s Disease: I am No Longer a Faceless Face”
A Film created solely by individuals within the JHD/HD community. View The Documentary Trailer! View the international video entries for the film! Submit your video testimony!
